A Plan of Action

A Message from Malaysia

(My cousins Duke and Teresita's kiddos- Lucas, Andrew and Valentina)

On April 17th, we headed back to Michigan a bit apprehensive about how Oliver would tolerate the travel after our last experience.  We decided to travel early in the day so we could stop frequently if needed and still make it home before bedtime.  (side note, I am very thankful for the full can of Lysol that the RMH housekeeper gave us for our journey on the off chance Oliver got sick in the car again.)  Thankfully, Oliver did really well.  We stopped for lunch when we spotted an accident ahead of us and were able to jump off the highway before we got stuck in traffic.  After a long, relaxed lunch, we got back in the car.  Oliver was fine with being in his seat, so long as only the bottom half was buckled and he could lean over on me.  We even got some giggles on the way home...

We had left Dr P's expecting to have a letter later in the week or Monday with his recommendations, but I got an e-mailed copy even before we arrived at home.  He had 21 items spelled out in great detail. Everything from a 1 gram low sodium diet  and a soft helmet to IVIG and Rituximab Infusions.  We were overwhelmed, but thankful to have a plan of action.  We will see Dr P again in 6 months...Oliver will astound them with his progress...we know it!