what just happened to me?!

July 25th, 2013

IVIG infusion.

This morning, I woke mommy up by giving her 3 kisses in 3 different spots, then a BIG hug around her neck!  She loved it!  (works every time)  

I get a little nervous when momma puts the EMLA cream on my port on infusion mornings.  She says it is supposed to keep it from hurting when they access my port, but it is cold and I don't like it.  I usually get pretty quiet afterwards.  {mommy's note: today he actually had his lips pressed together from that moment until we got to the clinic- not excited}.  

For the first time, everything went smoothly at the clinic.  The nurses were on board and had orders from the Doc to match what the protocol from the specialist recommended.  PHEW!  My mommy and daddy are so much more fun when they don't have to argue to get things done right.  I had a new nurse and I like her a lot.  Everything was going great....

I like to spend most of my infusion days playing in the dugout- today I met a lot of great kids who were also there for treatment.  Since we are all getting treatment, everyone is very careful with germs.  Not just me!  Towards the end of the day, a little girl was playing with me.    She was almost done with her chemo treatment and was getting her port hep-locked.  I guess the taste of the heparin was too much for her tummy, and she turned and threw up all over my lap!  She had been drinking blue gatorade to try to mask the taste, so my shorts were covered in blue.  I wasn't sure what to do...I just held my hands out to the side and froze.  Her mama leapt into action, and actually caught most of the 2nd round.  My mom and dad quickly got me out of my clothes and cleaned off with a mini-bath.  Thankfully they always bring extra clothes for me, cause the nurses wouldn't let me run around "naked boy" like I wanted to.  I didn't blame the little girl... I don't like the taste of that stuff either.  I think it is really strange that the medicine they put in my port makes my mouth taste funny!  

Thankfully, she wasn't ill, just had an upset tummy.  I was most upset that the playroom had to be closed while they cleaned it.  Mommy and daddy found it amusing that yet another incident report will be added to my record. AND, they were really proud of me for not crying and for keeping my hands out of my mouth!

My doctors say I look great.  I'm happy and feeling good....

{mommy's note:  Ollie's temper was fantastic despite the fact that he was awake from 4:30 am to 7 pm with NO NAP!!  mommy on the other hand, needs a nap!}